Old rules need not apply – Is Apple tearing up the rule book with #ResearchKit?
‘Purdah’ will very shortly fall over Whitehall as the General Election looms. At the end of March the airspace over government will be closed for six weeks or so. No new flights of Ministerial fancy...
View ArticleWe are looking for feedback on the #NIHRoktoask campaign from patients,...
We are the only country which runs a public awareness campaign across our national health system to encourage people to participate in clinical research – NIHR ‘OK to ask’. We’ve been doing it for...
View ArticleFrom ‘spacewalking’ patients to Bowie, the literature on public involvement...
It’s one of the hardest things they will have to do. It is physically and mentally draining. For many it will feel a lonely place. The atmosphere will be unlike anything they have ever experienced...
View ArticleHave you joined the new online course revolutionising the way the public can...
I do not ascribe to the view that you have to be ‘scientific literate’ as a pre-requisite to taking part in science. In the same way that I do not think you need to be fluent in French before you can...
View Article‘Stand up if you love clinical research’ on Intl Clinical Trials Day, 20 May...
My tickets for the FA Cup Final arrived in the post yesterday. I am very excited indeed. I have a feeling that my team will bring the trophy home to south London where it belongs. It is that time of...
View ArticleEU issues draft guidelines on providing clinical trial results so you and I...
You probably don’t need to hear another thing about the EU, do you? (By the way what a terrible EU referendum campaign it is – have you ever heard such hyperb******s from our politicians?) But this...
View ArticleThe post-Brexit liberalisation of #clinicaltrials could be the way to a...
There is much post-Brexit talk of using our new-found political independence to liberalise clinical trials in the U.K. We can cut ourselves free of all that terrible EU red-tape that has weighed us...
View ArticlePatients are part of the crew in health research not passengers. This week...
It’s a big week in research. To mark International Clinical Trials Day on Saturday 20th May, the National Institute for Health Research (NIHR) is promoting its ‘I Am Research’ (#iamresearch) national...
View Article‘Sticking with it’– retention issues in public involvement and health research
This week I had the good fortune to be on the judging panel for the NIHR Clinical Research Networks/McPin Foundation/MQ 2018 award for service user and carer involvement in mental health research. It...
View ArticleNIHR publishes latest data on patient experience in research, provides...
Hats off to the National Institute for Health Research (NIHR) Clinical Research Networks who published the latest data on patient experience in research this week. They have now been tracking patient...
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